Nov 10 2008

Sense About Science

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Comments: 7

Why am I just now hearing about this group? Perhaps because they are based in the UK and I am in the US? But the internet makes that transparent. I guess the profile of such groups including my own efforts) is not as high as it needs to be. Even for someone like me, who spends a great deal of time searching for and reading material on science and medicine, a significant group dedicated to the same effort escaped my notice.

In any case – I am glad to learn of them now, through a press release about a new publication of theirs. Here is their mission statement:

Sense About Science is an independent charitable trust. We respond to the misrepresentation of science and scientific evidence on issues that matter to society, from scares about plastic bottles, fluoride and the MMR vaccine to controversies about genetic modification, stem cell research and radiation. We work with scientists and civic groups to promote evidence and scientific reasoning in public discussion.

That sounds like a worthy cause.  Today they announced the publication of a guide for patients called I’ve got nothing to lose by trying it The guide is a response to the increasing number of websites selling dubious treatments to desperate patients. For various reasons, the internet itself being one of them, the flood gates have opened in recent years, and patients facing a terrible illness are now bombarded with recommendations and advertisements for all sorts of worthless, expensive, and at times harmful treatments – at a time when they are most vulnerable.

The publication is available for free download in pdf format. It is chock full of good basic advice for patients, for example:

Journalists take an interest in the development of treatments, but when you hear about new therapies it’s often about research that is at too early a stage to know whether it will be medically useful. Headline writers may pay little attention to the detail of an article in their need for a catchy title, and can imply that cures are just around the corner. In short, results can be exaggerated.

The information in the pdf is all good – if a bit understated. Perhaps it is just the typical British penchant for understatement, or maybe they are trying to take a soft approach. I do think they need to hit a bit harder in places.

I also think they could benefit from those medical experts (like my colleagues at science-based medicine, and Ben Goldacre and David Colquhoun from the UK) who have been writing and thinking about these issues for years. For example, they treat the placebo effect as being primarily a real biological response to the belief that one is being treated, while the majority of a measured placebo effect is better explained as illusory.

They also endorse evidence-based medicine (which I do as well) but seem unaware of the ways in which its weaknesses have been exploited by CAM proponents. Specifically, by eliminating prior plausibility from consideration it present a distorted view of the actual science, which is why a science-based approach is much better.

Well, hopefully we can benefit from cross-fertilization in the future.

Check out their website. They take on celebrity misinformation, common misconceptions, specific treatments, and give worthwhile primers on the nature of clinical evidence and similar topics. Overall, a great resource (even if they need to sharpen their teeth a bit).

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7 responses so far

7 Responses to “Sense About Science”

  1. smazenyyon 10 Nov 2008 at 2:31 pm

    I consider myself to be fairly clued-up about science news, but even as a UK resident, I haven’t heard of these guys either. I’m pleased to hear of their existence, especially with what seems like the rise of homoeopathy and similarly ridiculous ideologies over here. We don’t see much of this kind of activism at all in the UK, so any resistance to terminal credulity is most welcome, and like you I am surprised to have only just heard of this group. You’re absolutely right about their approach, which seems to be more “walking on eggshells” than “kicking ass and taking names”, but I think that probably reflects the general state of the problem over here, since from what I gather the insidious CAM movement hasn’t gained as much ground as it has in your fair nation. Overall, this information is invaluable to those in need of it, but it has to be more visible, and I hope you post helps towards that end.

  2. jacob6404on 10 Nov 2008 at 8:44 pm

    Thank for letting us know about this site, it is always encouraging to see more science advocacy and skeptic groups emerging.
    But Steven, your blogs and the Skeptics Guide has really spoiled me regarding the quality. So, groups or people have an extremely high standard in my estimation to compare with theness.

    -Jacob

  3. cpolsonbon 11 Nov 2008 at 8:54 am

    I did a post about this group on the SGU Forums back in January (http://skepchick.org/skepticsguide/index.php/topic,7442.0.html)they really are fantastic. They seem to be quite good at communicating directly to the public, a much needed skill.

  4. PaulJon 11 Nov 2008 at 4:00 pm

    A representative of this group was on BBC Radio last month, talking about so-called electro-smog. Links to the audio can be found here.

    They do seem to be doing good work, but I heard somewhere that that they have an agenda not limited to promoting good science, but extending into the active promotion of genetically modified crops (not that this is necessarily a bad thing…).

  5. Sense About Science « Buttle’s Worldon 17 Nov 2008 at 1:15 am

    [...] About Science Filed under: Posts — buttle @ 21:15 Dr. Novella has found another nice resource, a web site in Britain called Sense About Science. Today they announced the publication of a guide [...]

  6. podblackon 27 Dec 2008 at 11:56 am

    Yes. Have come across them before:
    http://www.guardian.co.uk/education/2003/dec/09/highereducation.uk2
    SAS has set up a working party on peer review, which is chaired and hosted by the Royal Society. One of its members is Tony Gilland, who is science and society director at the Institute of Ideas, a contributor to both LM and Spiked and the joint author of the proposal Frank Furedi made to the supermarkets. Another is Fiona Fox, the sister of Claire Fox, who runs the Institute of Ideas. Fiona Fox was a frequent contributor to LM. One of her articles generated outrage among human rights campaigners by denying that there had been a genocide in Rwanda.

    Fiona Fox is also the director of the Science Media Centre, the public relations body set up by Baroness Susan Greenfield of the Royal Institution. It is funded, among others, by the pharmaceutical companies Astra Zeneca, Dupont and Pfizer. Fox has used the Science Media Centre to promote the views of industry and to launch fierce attacks against those who question them. She ran the campaign, for example, to rubbish last year’s BBC drama Fields of Gold.

  7. Scarybugon 05 Jun 2009 at 4:08 pm

    Nice attempt at guilt by association, podblack, but I don’t see any of those people listed as current members of the board of trustees or the advisory council on the SAS website. The article you cite is from 2003.

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