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	<title>Comments on: Restless Leg Syndrome</title>
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	<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/</link>
	<description>Your Daily Fix of Neuroscience, Skepticism, and Critical Thinking</description>
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		<title>By: Avail DeLand</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-50504</link>
		<dc:creator>Avail DeLand</dc:creator>
		<pubDate>Tue, 19 Feb 2013 03:24:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-50504</guid>
		<description>I agree with what is being said on the subject of RLS clinical studies. I know that there is some confusion that still surrounds this particular condition, and many people just don&#039;t understand what it can be like to feel those sensations in their legs on a constant basis. For that reason, we have added an educational video on restless leg syndrome, which can be viewed at: http://www.availclinical.com/clinical-trials/restless-leg-syndrome/</description>
		<content:encoded><![CDATA[<p>I agree with what is being said on the subject of RLS clinical studies. I know that there is some confusion that still surrounds this particular condition, and many people just don&#8217;t understand what it can be like to feel those sensations in their legs on a constant basis. For that reason, we have added an educational video on restless leg syndrome, which can be viewed at: <a href="http://www.availclinical.com/clinical-trials/restless-leg-syndrome/" rel="nofollow">http://www.availclinical.com/clinical-trials/restless-leg-syndrome/</a></p>
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		<title>By: AchieveAlabama</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-48305</link>
		<dc:creator>AchieveAlabama</dc:creator>
		<pubDate>Wed, 09 Jan 2013 22:17:43 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-48305</guid>
		<description>Hey, I really like the post that you have provided here. I know that this can be a complex condition, and sometimes people can live for years without knowing the cause of these sensations. If you are looking for more resources on RLS clinical trials, then you should also go check out: http://www.achieveclinical.com/clinical-trials/restless-leg-syndrome/ This page has some valuable information, which you should look over carefully if you are considering taking part in a trial.</description>
		<content:encoded><![CDATA[<p>Hey, I really like the post that you have provided here. I know that this can be a complex condition, and sometimes people can live for years without knowing the cause of these sensations. If you are looking for more resources on RLS clinical trials, then you should also go check out: <a href="http://www.achieveclinical.com/clinical-trials/restless-leg-syndrome/" rel="nofollow">http://www.achieveclinical.com/clinical-trials/restless-leg-syndrome/</a> This page has some valuable information, which you should look over carefully if you are considering taking part in a trial.</p>
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		<title>By: clinicalgps</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-39091</link>
		<dc:creator>clinicalgps</dc:creator>
		<pubDate>Wed, 21 Dec 2011 23:01:50 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-39091</guid>
		<description>There are a number of clinical research trials around the country which are focused on developing new treatments for restless leg syndrome. Regardless of what  some people may believe, there are people out there who are affected by this condition. For a full list of restless leg clinical research trials check http://www.clinicaltrialsgps.com/clinical-trials-indications/restless-leg-syndrome/.</description>
		<content:encoded><![CDATA[<p>There are a number of clinical research trials around the country which are focused on developing new treatments for restless leg syndrome. Regardless of what  some people may believe, there are people out there who are affected by this condition. For a full list of restless leg clinical research trials check <a href="http://www.clinicaltrialsgps.com/clinical-trials-indications/restless-leg-syndrome/" rel="nofollow">http://www.clinicaltrialsgps.com/clinical-trials-indications/restless-leg-syndrome/</a>.</p>
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		<title>By: Privic</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-32789</link>
		<dc:creator>Privic</dc:creator>
		<pubDate>Mon, 23 May 2011 21:22:56 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-32789</guid>
		<description>I tried so many things to stop my legs from shaking, and I only found this privic spray that calms my legs. You can check their website, www.privic.com. Hope it can help you too!</description>
		<content:encoded><![CDATA[<p>I tried so many things to stop my legs from shaking, and I only found this privic spray that calms my legs. You can check their website, <a href="http://www.privic.com" rel="nofollow">http://www.privic.com</a>. Hope it can help you too!</p>
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		<title>By: NeuroLogica Blog &#187; Real vs Psychogenic Pain</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-3639</link>
		<dc:creator>NeuroLogica Blog &#187; Real vs Psychogenic Pain</dc:creator>
		<pubDate>Thu, 12 Jun 2008 12:00:52 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-3639</guid>
		<description>[...] I cover dubious medical topics on this blog in order to expose them, but occasionally I cover diseases or disorders that are genuine but may seem questionable. That is just one more of the negative [...]</description>
		<content:encoded><![CDATA[<p>[...] I cover dubious medical topics on this blog in order to expose them, but occasionally I cover diseases or disorders that are genuine but may seem questionable. That is just one more of the negative [...]</p>
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		<title>By: NeuroLogica Blog &#187; Drinking the Anti-Vaccine Kool-Aid</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-3503</link>
		<dc:creator>NeuroLogica Blog &#187; Drinking the Anti-Vaccine Kool-Aid</dc:creator>
		<pubDate>Fri, 06 Jun 2008 12:01:05 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-3503</guid>
		<description>[...] inconveniencing their buddies in &#8220;Big Pharma.&#8221; (Carrey also throws in the myth that restless leg syndrome is a made up diagnosis by Big Pharma - so I guess he only has to care about diseases that touch him [...]</description>
		<content:encoded><![CDATA[<p>[...] inconveniencing their buddies in &#8220;Big Pharma.&#8221; (Carrey also throws in the myth that restless leg syndrome is a made up diagnosis by Big Pharma &#8211; so I guess he only has to care about diseases that touch him [...]</p>
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		<title>By: LepleyDO</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-1270</link>
		<dc:creator>LepleyDO</dc:creator>
		<pubDate>Sat, 16 Feb 2008 15:33:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-1270</guid>
		<description>&quot;The Medical Letter&quot; is far more discerning and credible about the risks and benefits of various medications than Medscape, in my opinion. The cost makes it less accessible. Which is the point I was trying to make above.</description>
		<content:encoded><![CDATA[<p>&#8220;The Medical Letter&#8221; is far more discerning and credible about the risks and benefits of various medications than Medscape, in my opinion. The cost makes it less accessible. Which is the point I was trying to make above.</p>
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		<title>By: LepleyDO</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-1269</link>
		<dc:creator>LepleyDO</dc:creator>
		<pubDate>Sat, 16 Feb 2008 15:28:19 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-1269</guid>
		<description>I disagree. I&#039;m not suggesting we ration healthcare, I&#039;m suggesting we should curb the consumerism and restrict DTC advertising. This is not necessarily censorship, and many industrialized countries do this which share our same free speech values.

I agree I probably do underestimate the negative consequences of RLS, in primary care my knowledge is superficial on a range of diseases. But I do think you underestimate how difficult it can be to find independent sources of physician education outside of academic institutions. Pretty much all the CME lectures I come across are industry sponsored. I think it&#039;s like this in many smaller communities.

Independent education is costly for the independent physician. Industry sponsored seminars tend to be free for me, the bill being footed by the drug companies. Compare an analysis of various medications on Medscape, a &quot;free&quot; education service (heavy on pharm ads), to one from &quot;The Medical Letter&quot;, a nonprofit, pharm-free, subscription service, and subtle but real differences are apparent.

I also think you underestimate the strain that prior auth&#039;s can put on a small independent practice trying to minimize overhead. But I agree that this is more of an insurance problem than the pharm industry.

I agree that these medicines help RLS. I just think the way they are marketed directly to patients, and the way the industry educates physicians, is what is harmful.</description>
		<content:encoded><![CDATA[<p>I disagree. I&#8217;m not suggesting we ration healthcare, I&#8217;m suggesting we should curb the consumerism and restrict DTC advertising. This is not necessarily censorship, and many industrialized countries do this which share our same free speech values.</p>
<p>I agree I probably do underestimate the negative consequences of RLS, in primary care my knowledge is superficial on a range of diseases. But I do think you underestimate how difficult it can be to find independent sources of physician education outside of academic institutions. Pretty much all the CME lectures I come across are industry sponsored. I think it&#8217;s like this in many smaller communities.</p>
<p>Independent education is costly for the independent physician. Industry sponsored seminars tend to be free for me, the bill being footed by the drug companies. Compare an analysis of various medications on Medscape, a &#8220;free&#8221; education service (heavy on pharm ads), to one from &#8220;The Medical Letter&#8221;, a nonprofit, pharm-free, subscription service, and subtle but real differences are apparent.</p>
<p>I also think you underestimate the strain that prior auth&#8217;s can put on a small independent practice trying to minimize overhead. But I agree that this is more of an insurance problem than the pharm industry.</p>
<p>I agree that these medicines help RLS. I just think the way they are marketed directly to patients, and the way the industry educates physicians, is what is harmful.</p>
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		<title>By: Steven Novella</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-1263</link>
		<dc:creator>Steven Novella</dc:creator>
		<pubDate>Sat, 16 Feb 2008 13:24:31 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-1263</guid>
		<description>LepleyDO,

I acknowledged that promoting a specific treatment for a specific disease can lead to overdiagnosis and over prescribing. My point was that this is not necessarily the case. Also, evidence suggests that underprescribing is as common as overprescribing. 

I agree with your point about healthcare costs - but let&#039;s call this what it is - rationing health care. You are essentially saying that increasing awareness of a disease and treatment leads to people being treated and this raises health care costs - which is true whether or not the treatment is appropriate. We both agree that overprescribing is bad, but how do you define this. If medication for moderate RLS improves someones quality of life, is that worth it?

I also think you are underestimating the consequences of RLS in many patients, which is sleep deprivation. This has a host of negative health consequences and may even increase the ultimate cost of health care. 

The solution to overdiagnosis is not censorship but physician education. 

On your final point, I have not found this causes a problem in getting these medication to PD patients. At worst it creates more work for my office staff who have to submit the prior auth. But I blame this on the insurance companies - not an evidence-based extension of the indication for these meds.</description>
		<content:encoded><![CDATA[<p>LepleyDO,</p>
<p>I acknowledged that promoting a specific treatment for a specific disease can lead to overdiagnosis and over prescribing. My point was that this is not necessarily the case. Also, evidence suggests that underprescribing is as common as overprescribing. </p>
<p>I agree with your point about healthcare costs &#8211; but let&#8217;s call this what it is &#8211; rationing health care. You are essentially saying that increasing awareness of a disease and treatment leads to people being treated and this raises health care costs &#8211; which is true whether or not the treatment is appropriate. We both agree that overprescribing is bad, but how do you define this. If medication for moderate RLS improves someones quality of life, is that worth it?</p>
<p>I also think you are underestimating the consequences of RLS in many patients, which is sleep deprivation. This has a host of negative health consequences and may even increase the ultimate cost of health care. </p>
<p>The solution to overdiagnosis is not censorship but physician education. </p>
<p>On your final point, I have not found this causes a problem in getting these medication to PD patients. At worst it creates more work for my office staff who have to submit the prior auth. But I blame this on the insurance companies &#8211; not an evidence-based extension of the indication for these meds.</p>
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		<title>By: LepleyDO</title>
		<link>http://theness.com/neurologicablog/index.php/restless-leg-syndrome/comment-page-1/#comment-1259</link>
		<dc:creator>LepleyDO</dc:creator>
		<pubDate>Sat, 16 Feb 2008 04:03:40 +0000</pubDate>
		<guid isPermaLink="false">http://www.theness.com/neurologicablog/?p=183#comment-1259</guid>
		<description>&quot;However, such advertising is not necessarily all bad. Many diseases are grossly underdiagnosed, and raising awareness may actually improve medical care. It is a fallacy to assume that anything that is in the self-interest of a large corporation must be bad.&quot;

What you call raising awareness, I would call disease mongering. I would say this out of concern for healthcare costs in general, however, and not a prioiri anti-pharm ideology. Your post seems to suggest that criticism of RLS hype can only arise from knee jerk industry skepticism.

I think as a neurologist, your vantage point of RLS is different than what I see in primary care. You see more cases of RLS, and more severe cases causing significant disability. But, by far, the bigger public health problem is rising healthcare cost, and people&#039;s inability to afford health insurance. RLS hype, which you acknowledge can lead to overdiagnosis, will escalate cost, and reduce people&#039;s access to health insurance. This is the harm.

I&#039;ve never seen a seminar or educational program on RLS offered in my area that wasn&#039;t industry sponsored.

Also, RLS probably exists on a continuim, with medications reserved for those on the moderate to severe end of the spectrum. However, now the typical patient comes in specifically requesting the medication, and doctors have to work backwards from there. This leads to a tendency to overprescribe, because as a business there is a &quot;customer is always right&quot; axiom that exists in doctors offices.

If anything, the RLS hype also hurts Parkison&#039;s patients, because the increase cost has led some insurers to make these drugs &quot;prior authotization only&quot; which makes it harder for PD patients to obtain the medications.</description>
		<content:encoded><![CDATA[<p>&#8220;However, such advertising is not necessarily all bad. Many diseases are grossly underdiagnosed, and raising awareness may actually improve medical care. It is a fallacy to assume that anything that is in the self-interest of a large corporation must be bad.&#8221;</p>
<p>What you call raising awareness, I would call disease mongering. I would say this out of concern for healthcare costs in general, however, and not a prioiri anti-pharm ideology. Your post seems to suggest that criticism of RLS hype can only arise from knee jerk industry skepticism.</p>
<p>I think as a neurologist, your vantage point of RLS is different than what I see in primary care. You see more cases of RLS, and more severe cases causing significant disability. But, by far, the bigger public health problem is rising healthcare cost, and people&#8217;s inability to afford health insurance. RLS hype, which you acknowledge can lead to overdiagnosis, will escalate cost, and reduce people&#8217;s access to health insurance. This is the harm.</p>
<p>I&#8217;ve never seen a seminar or educational program on RLS offered in my area that wasn&#8217;t industry sponsored.</p>
<p>Also, RLS probably exists on a continuim, with medications reserved for those on the moderate to severe end of the spectrum. However, now the typical patient comes in specifically requesting the medication, and doctors have to work backwards from there. This leads to a tendency to overprescribe, because as a business there is a &#8220;customer is always right&#8221; axiom that exists in doctors offices.</p>
<p>If anything, the RLS hype also hurts Parkison&#8217;s patients, because the increase cost has led some insurers to make these drugs &#8220;prior authotization only&#8221; which makes it harder for PD patients to obtain the medications.</p>
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